BAS Conference - Kerry is our Rising Research Star! 🌟

The UTILISE team have been busy spreading the word about our work at international conferences over the last couple of months.

In September, Kerry presented (twice!) at the British Aphasiology Society (BAS) Conference, which was held in London at UCL Queen Square. She spoke about outcomes of our pilot trial, both qualitative and quantitative, which we ran earlier in the year. We would like to thank all the participants of the pilot trial for their work using the app and for their attendance at focus groups. These participants gave us valuable insight into their experiences and shared their suggestions for improving the app. Kerry presented these insights as part of her presentations, highlighting the importance of developing effective remote therapy options to maximise dose potential for patients.

Kerry Dathan at the British Aphasiology Society Conference with her Rising Research Star award.

We would also like to thank the BAS team for giving us the opportunity to present our work. It was a terrific 3-day event with lots of fascinating talks, including some from service users. UTILISE team member Fern also presented a poster, sharing some outcomes from our in-person therapy trial.

We are very proud that Kerry was awarded the “Rising Research Star” award for her contributions to the conference. She is, without doubt, already a star, and has a bright research career ahead of her.

Well done, Kerry! A true asset to the team.

Dizzying heights for Dyscover - Tae's tandem 🪂

We at UTILISE are excited (and nervous) to tell you all that our fantastic intern, Tae Horsfield, will be jumping from a plane, 10,000ft above the ground, in just over a month to raise money for aphasia charity Dyscover!

Tae is a wonderful person, who always puts others before herself. In her greatest feat of selflessness yet, she has taken on the challenge of a parachute jump, despite being terrified of heights, to bring support to a great cause. Tae has been volunteering for Dyscover, a charity that supports people living with aphasia, for several months. Daily sessions are run by speech and language therapists and volunteers, to provide for support for people living with aphasia as well as their family, friends and carers. They help people to develop their own communication strategies that work for them, and create a sense of community for people who often report feeling isolated as a result of their difficulties with speech, language and communication.

In Tae’s own words:

“One thing I can say is every member at Dyscover I have had the pleasure of meeting is determined to participate in all activities. I hope that I will be able to be as positive, courageous, and determined as the members at Dyscover when I jump out of the plane”.

The UTILISE team will be wishing Tae good weather and good luck on the 27th of July, with our feet planted firmly on the ground! To find out more, visit Tae’s fundraising page here.

Kerry Corley on UTILISE self-managed therapy

We are hugely grateful to the Stroke Association for funding our ongoing research into post-stroke aphasia.

The UTILISE project has been developed with the aim of improving people with aphasia’s ability to produce and understand every-day sentences. We are about to take the exciting next step in our project journey, which involves lending people an iPad that they can use to access our therapy at home. Our work with Therapy Box has made it possible for us to build a version of our therapy which people can use remotely, meaning there is less travel commitment, less expense, and opportunity for people to spend more time doing therapy exercises from the comfort of their own sofa.

We are thrilled to share this Stroke Association video with you, in which our UTILISE PhD researcher, Kerry Corley, explains more about why she is part of UTILISE, and the work that we do. Professor Rosemary Varley, our project lead, and Tony, an individual with aphasia, also talk about why this research is so important.

The Stroke Association would not be able to fund such valuable work without the contributions of donors and the public. To make a donation to the Stroke Association, click here.

Thank you so much to everyone who supports our work!

Fundraising for Aphasia - 2023 Brighton Half Marathon

In February 2023, our UTILISE researcher, Fern, ran the Brighton Half Marathon to raise money for aphasia charity Say Aphasia.

Say Aphasia is a fantastic charity run by people with aphasia, for people with aphasia. Founded by our steering committee member, Colin Lyall, following his stroke in 2013, the charity now has 15 drop-in groups (including a Zoom group) up and running across the UK, from Brighton to Abergavenny to Darlington. These groups offer a place for people with aphasia, whether caused by stroke or other brain injury, to meet people who can relate to their experiences and provide support in the form of community. The first-hand experience of those that run the charity means that there is a unique insight into what people living with aphasia want and need in the months and years that follow the onset of their speech and language difficulties.

So, on a bright and breezy February morning, Fern, her cousin Emily, her friend Lyle, founder of Say Aphasia, Colin Lyall, and several other fundraisers, set off on the 13.1-mile run. Fern and her team managed to raise over £1500 for the charity. The fundraising links are open indefinitely, so see this page if you are interested in making a donation in support of the cause.

Stroke Association Amazing Brains 2023

Jason Parker, stroke survivor, sharing his experience of struggling with mental health after his stroke.

Rosemary, Kerry and Fern from the UTILISE team were very excited to attend the Amazing Brains 2023 event last week, hosted by the Stroke Association.

Kerry Corley and Fern Rodgers from the UTILISE project, in front of Kerry’s award recognition screen, which reads: “I am excited to have a part to play in increasing our knowledge of self-directed computer therapies [for aphasia']. They have a key role in the future of stroke rehabilitation as a leap forward in the amount of therapy people with post-stroke difficulties can access.”

The event centred around the hugely important topic of mental health after stroke. After a significant, life changing event, like a stroke, it is common for people to struggle with feelings of anxiety, depression or anger. This is even more common in people with post-stroke aphasia, many of whom report feelings of isolation, loneliness and loss of confidence. Jason Parker gave a moving and inspirational speech about his first-hand experiences of working through mental health difficulties following his stroke, and how his determination helped him to deal with this experience and get him back to work.

Professor Mark Tarrant, Professor Maggie Lawrence, and Dr Emma Patchwood then spoke about their Stroke Association funded research into post-stroke mental health and the ways in which they are working to reduce the emotional burden experienced by many stroke survivors.

Kerry Corley, Fern Rodgers and Professor Rosemary Varley at Amazing Brains 2023.

We would like to thank the Stroke Association for running such a fantastic event, and for funding the UTILISE research project. We were also thrilled to celebrate our team’s recent funding success too, with Kerry Corley working towards her PhD and Dr Claudia Bruns commencing her post-doctoral fellowship. Without this funding, our work to help people living with aphasia after stroke would not be possible. Difficulty communicating can impact quality of life, and we hope to help.

If you are struggling with your mental health following a stroke, you are not alone. You can visit this webpage for more information, or, you can call the Samaritans on 116 123.

Spring 2023 at UTILISE

It’s 2023! What have we been working on? 

Time for an update from the UTILISE team. We have been working hard over the past few months…

UTILISE 1 

Recruitment for our first trial, “UTILISE 1”, in which our participants travelled into UCL for 12 therapy sessions with a researcher, has finished. Fern, Claudia and Kerry have now finished collecting data; the next step will be analysing the results so we can understand how much the therapy helps and who might benefit from it the most. 

Our intern, Tae, has carefully checked videos of us conducting assessments, to make sure that all researchers have been doing the same thing and have not introduced any bias to the results. She has found that we have high levels of fidelity, which is important for the integrity of our research. Put simply, the test was conducted well.

UTILISE 2 

We have also been busy setting up for the next phase, “UTILISE 2”. We have been working hard with our software partners, Therapy Box, to turn the original therapy programme into an app. This means that people will be able to do the therapy by themselves, at home. With remote access to our tasks, participants can do the therapy from the comfort of their own sofas at times that work best for them.

Kerry and Fern have put together a PPI (Patient Public Involvement) group. People with aphasia and their family members are sharing their opinions and insights with us so that we can improve the research plan and better direct the research towards what people with aphasia want. We have had 3 meetings on Zoom, so far, and are grateful to those involved for their time and contributions.  

The future of UTILISE 

Rosemary, leader of the UTILISE team, has been putting together an application for future funding, which, if awarded, would help us to continue developing UTILISE in the coming years, and allow us to collect more data to increase the confidence in our findings.

In other news… 

UTILISE researcher, Claudia Bruns, welcomed the arrival of her second daughter, baby Millie, in October 2022. Mum, baby and family are doing well, and Claudia is enjoying her maternity leave. 

For more information on the work of the team: 

• Watch this space for updates.

• Get in touch with Fern or Kerry to learn about ways you could be involved. We have a waiting list for UTILISE 2, and are always keen to hear people’s points of view. We always take an evidence-based approach to developing our projects, but we don’t know what it’s like to live with aphasia first-hand.